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Hypothalamic Hamartoma Uncontrolled Gelastic
Seizures - United Kingdom (HHUGS-UK)

HHUGS-UK is an organisation exists to improve the lives of everyone affected by the condition, Hypothalamic Hamartoma Uncontrolled Gelastic Seizures. We are led by and represent people with Hypothalamic Hamartoma, a rare form of brain tumour, their families, carers and other people who have interest in the group. HHUGS-UK is here to support them every step of the way through living with the condition.
The New Special Educational Needs System in England:
A Guide to Parents and professionals

In 2014, the government has introduced new legislations and guidance around Special Educational Needs (SEN) in England. The following information provides a summary of the few changes for parents of children  and young people affected by Hypothalamic Hamartoma Uncontrolled Gelastic Seizures (HHUGS) and the professionals that work alongside them.

The Childrens and Families Act 2014

Special Educational Needs and Disability Code of Practice: 0 to 25 years
Benefits  and Financial Support 

HH can present varying types of disability on which can impact on a family, if looking after a child or just be it on your own. There are available financial support on which you might be entitled to claim. For more information, please visit:
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